Thursday, September 09, 2004

The Source of All of This

You and I met in a support group for people who have XYZmia.

XYZmia is a disease that slows down your ability to walk. We can still walk, but XYZmia is progressive and my walking has slowed down to 50 steps a minute and yours' has progressed further - you can only walk 20 steps a minute.

Not being able to walk fast enough in life impairs our ability to be timely at the workplace, it annoys friends and relatives, and it effects our lives in other ways.

XYZmia isn't that economy, either; it's genetically inherited and it strikes women and men at about the same rate. One in ten people in the United States will get XYZmia and there is no cure - though there are a few drugs that improves one's walking speed. Plus, there are roller tennants specially made for people with the disease - but they are expensive.

You and I aren't living the same life as the average American, anymore, since diagnosis and the onset of our symptoms. We have needs that are different than most people. In our city, Metropolis, there are a few doctors who specialize in walking and XYZmia - the local university is considering studying it in the next five years, and there are a few non-profits that deal with other diseases that also slows one's walking - but, there's no assistance that is specific to our disease, XYZmia.

As our livelihood is affected by our slow paces, we have been passed up for promotions. Me, I was denied a managerial position as the head dance teacher at the studio that I work for. You were told to keep working at electric meter information collection and some day, you will be rewarded, while most of your co-workers have moved up to electricity crime detective. Also, we need to ambulate quickly, at times, but neither of us can afford the wheelchair or roller tennis shoes that could improve our quality of life. Really, so far, we have the good will of our loved ones caring for us and the support group we found online. It's not specific to people who have XYZmia, but it is a general support group for people with chronic diseases to talk out their issues.

There are needs among many subsets of a single population of people, land, animals, water, air, etc. that puts them in common with others of their kind.

The non profit organizations that we work for are mandated by our mission statements which usually address a single problem. We then work for these agencies and their missions writing proposals and attempting to acquire grant donations. But, the source can not be lost on us, of where all of the work is stemming from; other in our community need us to fulfill our missions (if our mission statement and org's work is relevant).

Grant writing directly enables the services, programs, projects, and work that our agencies do. In this way, our work is directly related to both the success of the agency, the success of the mission statement, and whether the need in our community is being met.

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